Saturday, April 30, 2011

Have you heard the story about April?

I love Spring. The flowers blooming, the sun returning, thunderstorms and new beginnings. April is especially important to me.
Today is mine and my husband's 17th anniversary. Seventeen years of ups and downs, drama and adventure. Eleven moves, eleven years with the Navy, four kids, four surgeries, and inumerable laughs. I'll come back to the anniversary bit in a moment...
Our oldest son was born at the beginning of April, turning sixteen this year. There's nothing like having a teenager to make you feel old, haha.
For the second year in a row, we spent Easter weekend at my sister's home in Idaho. Ten adults, fifteen kids, and surprisingly little craziness!
This April was filled with a few other exciting (and hopefully less annual) events such as Geoff breaking his nose and my purchasing the bridal store I've been working at. Both are changes that will leave a noticeable mark on our lives and hopefully improve our character a bit.
April is also Autism Awareness month. In the past few years that has meant more focused participation on local events to help promote awareness in our community. This year I've just been too busy to contribute as much as I'd like and quite frankly my kids are doing so well that I sometimes feel guilty attending free things with my 'normal' looking kiddos. I have been uplifted and inspired by many friends, both local and abroad, but have stayed carefully inside my bubble of content this month. Today, however, kicked my butt and reminded me that no matter how much I want to pretend the Autism is always there.
Our plans for the day included my spending a few hours at work while hubby and the kids spent time with friends at the park. We had hoped to make it to an Autism event but weren't able to squeeze it in before a birthday party for another friend at Chuck E. Cheese. I should have seen the warning signs as I watched Spencer play with his buddies, but I did a great job of ignoring them instead. He had wandered from the group, unaware of where anyone else was, and was gnawing on his tongue... something I hadn't seen him do until this week. Alex used to do it all the time. Once the party was finished Spencer started on a vocal loop of requesting to go home with his friend over, and over, and over, and over. Thank goodness the other mom was an understanding smooth talker and was able to assist in redirecting his request.
Two hours later the kids were fed and Doug and I were getting ready to go out for the evening, for wat is usually our one and only annual attempt at a date night. Then Spencer stumbled to the living room and dropped into my lap. My little man isn't so little anymore... At almost eleven he's not a big fan of mom's hugs so it was a rare thing indeed for me to have him snuggled in my arms for over an hour. He hurt but could only respond with 'I don't know' for most of the evening. After a lot of snuggling and blocking out the world he seems to be okay again but we are spending yet another anniversary at home.

The following is a quote I've borrowed from another Autism mom that seems to fit perfectly this last day of Autism Awareness month:
'Wouldn’t it just be lovely if after Autism Awareness Month was over we all got one day – just one, single solitary day when we didn’t have to be AWARE of autism? Just one, God. Please. For my friends. For their kids. Just one. Amen.'
~ A Diary of a Mom

4 comments:

  1. There's always next year. You're doing a great job with your kids and I'm so proud of you for getting the Bridal Shop. Stay strong.

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  2. Thanks Ben. What an adventure the shop has been!

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  3. One day would be amazing!!! Congrats on your purchase of the bridal shop! Also, I see you're in WA...will you guys be coming to the Marfan conf. this summer in OR?

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  4. Thank you! I haven't made plans for the conference yet but probably should. I've gotten such a run around with docs that we don't have any official diagnosis, but my middle schooler came home from school a few weeks ago saying they'd been studying Marfan's in class and he was sure his older brother has it. I laughed the my 13yr old could figure it out but the geneticist that I fought to see told me to come back in a few years if my 16yr old son hasn't stopped growing. I had to then explain to the 13yr old that I'm fairly certain he has it too. Both have arm spans 4-6" longer than their height and a myriad of other obvious signs. sigh... someday doctors will catch up. :)

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